Surveys

Guidelines for Surveys of Membership

Approval is required to advertise surveys to the ARA Membership. The procedure for Surveys of the Membership can be found here.
Please advise:

  • What are the broad aims of the survey?
  • Why are you doing the survey i.e. is it a trainee research project?
  • The target audience ie rheumatologists, trainees, non-medical members?
  • What are you trying to achieve?
  • Does the study have ethics approval? If so, please supply the HREC committee and the relevant ethics approval.
  • Is it endorsed by a member of the ARA or one of its committees or groups?
  • The time period of the survey ie when does it finish?
  • If you are planning for the responses to be anonymised, then it is best not to include the postcode as one of the questions. Due to the small number of ARA members, inclusion of a postcode will likely allow identification even if names are not included within the survey response.


Please enclose a copy of the survey, the research protocol and ethics approval with your application and send to ara@rheumatology.org.au.

Are you a rheumatologist who looks after women of reproductive age?

Click here to complete the survey.

You are invited to participate in an online survey via Redcap about contraception. The aim of this survey is to determine rheumatologists knowledge, attitudes, and behaviours about family planning and for prescribing contraception in patients with autoimmune and rheumatic diseases of reproductive age in Australia. Taking part in this study is voluntary.

This study involves the completion of a short anonymous survey. This survey should take less than 5 minutes of your time. Please feel free to forward the survey to your colleagues. The survey will conclude after approximately 30% of rheumatologists have responded or February 2024. 

The study is being conducted by Dr Abhishikta Dey, Dr Antonia Shand, Dr Geraldine Hassett and Prof Natasha Nassar from the Royal Prince Alfred Hospital, Royal Hospital for Women, Liverpool Hospital and University of Sydney. 

Your responses will be confidential and anonymous. The study contains no identifying information.

This study has been approved by the Human Research Ethics Committee (HREC) of The University of Sydney [HREC 2023/516].

Survey Closes: 31 May 2024

Date Posted: 14 September 2023
 

Multiple Advanced Therapies in Inflammatory Diseases, the MAT study

Click here to complete the survey.

 

Summary information about the survey including who to contact with questions.

Do you have patients on or ≥2 advanced immunosuppressive therapies (eg biological agents) concurrently that are not typically used in combination?

Researchers from the University of Sydney are looking to assess the important and emerging area of outcomes of these patients, via an online de-identified registry. All data is stored securely and in the strictest of confidence, and the study has been granted Human Research Ethics Committee approval.

Please follow this link for the database to fill out patient details or receive further details. The survey takes 5-10 minutes (per patient). Any clinician who fills ≥10 patients will be offered co-authorship on the academic output.

Many thanks in advance for your time

Dr John Chetwood (john.chetwood@health.nsw.gov.au)
On behalf of the
The Multiple Advanced Therapies Research Team 

Survey Closes: 1 December 2024

Date Posted: 4 January 2024

Healthcare transition for adolescents and young adults with X-linked hypophosphataemia (XLH)

Click here to complete the survey.

We would like to invite you to consider participating in a research study as part of Jessica Sandy’s PhD entitled Healthcare transition for adolescents and young adults with X-linked hypophosphataemia (XLH). 

We are inviting all clinicians who manage a paediatric or adult with XLH to complete an anonymous, short, online questionnaire to better understand healthcare transition practice from paediatric to adult care. Involvement in this research is voluntary.

We aim to use these data to help develop an expert consensus guideline for healthcare transition for adolescent and young adults with XLH in Australia. This study is part of wider research on XLH as part of the primary investigator (Jessica Sandy)’s higher research degree (PhD). 

Please click here to read the participant information sheet and see the link below to the survey:

https://redcap.sydney.edu.au/surveys/?s=TJ7A9RX7CHJWPD7M

This study has been approved by the Sydney Children’s Hospitals Network (SCHN) HREC (approval number: 2023/ETH01675). 

If you have any concerns or complaints about any aspect of the project or the way it is being conducted, you may contact the Executive Officer of the SCHN HREC on (02) 9845 1253 or SCHN-Ethics@health.nsw.gov.au. 

Please contact Jessica Sandy if you have any questions. Thank you for participating in this research.

Jessica Sandy
Paediatric Endocrine Fellow and PhD student
The Children’s Hospital at Westmead / University of Sydney
Jessica.Sandy@health.nsw.gov.au

Survey Closes: 1 June 2024

Date Posted: 28 February 2024
 

The Rheumatology Knowledge, Attitudes, & Practice (KAP) Survey

Click here to complete the survey.

The purpose of this 5-minute survey is to establish an understanding of the knowledge and attitudes about cannabis by rheumatologists and those who care for people with rheumatic diseases from around the world. The survey will likely close April 30, 2024. 

Please contact Dr. Kaleb Michaud at rheumkap@ndb.org or call +1-316-263-2125 for more information or questions. 

If you have questions about your rights as a research subject, you may contact Solutions IRB at +1-855-226-4472 or participants@solutionsirb.com.

Click here to read the privacy statement.

Survey Closes: 1 October 2024

Date Posted: 28 February 2024