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Approval is required to advertise surveys to the ARA Membership. The procedure for Surveys of the Membership can be found here. Please advise:
Please enclose a copy of the survey, the research protocol and ethics approval with your application and send to ara@rheumatology.org.au.
Click here to complete the survey.
We would like to invite you to consider participating in a research study as part of Jessica Sandy’s PhD entitled Healthcare transition for adolescents and young adults with X-linked hypophosphataemia (XLH). We are inviting all clinicians who manage a paediatric or adult with XLH to complete an anonymous, short, online questionnaire to better understand healthcare transition practice from paediatric to adult care. Involvement in this research is voluntary. We aim to use these data to help develop an expert consensus guideline for healthcare transition for adolescent and young adults with XLH in Australia. This study is part of wider research on XLH as part of the primary investigator (Jessica Sandy)’s higher research degree (PhD). Please click here to read the participant information sheet and see the link below to the survey:
https://redcap.sydney.edu.au/surveys/?s=TJ7A9RX7CHJWPD7M
This study has been approved by the Sydney Children’s Hospitals Network (SCHN) HREC (approval number: 2023/ETH01675).
If you have any concerns or complaints about any aspect of the project or the way it is being conducted, you may contact the Executive Officer of the SCHN HREC on (02) 9845 1253 or SCHN-Ethics@health.nsw.gov.au.
Please contact Jessica Sandy if you have any questions. Thank you for participating in this research.
Jessica Sandy Paediatric Endocrine Fellow and PhD student The Children’s Hospital at Westmead / University of Sydney Jessica.Sandy@health.nsw.gov.au
Date Posted: 28 February 2024
The purpose of this 5-minute survey is to establish an understanding of the knowledge and attitudes about cannabis by rheumatologists and those who care for people with rheumatic diseases from around the world. The survey will likely close April 30, 2024. Please contact Dr. Kaleb Michaud at rheumkap@ndb.org or call +1-316-263-2125 for more information or questions.
If you have questions about your rights as a research subject, you may contact Solutions IRB at +1-855-226-4472 or participants@solutionsirb.com.
Click here to read the privacy statement.
Summary information about the survey including who to contact with questions.
Do you have patients on or ≥2 advanced immunosuppressive therapies (eg biological agents) concurrently that are not typically used in combination?
Researchers from the University of Sydney are looking to assess the important and emerging area of outcomes of these patients, via an online de-identified registry. All data is stored securely and in the strictest of confidence, and the study has been granted Human Research Ethics Committee approval.
Please follow this link for the database to fill out patient details or receive further details. The survey takes 5-10 minutes (per patient). Any clinician who fills ≥10 patients will be offered co-authorship on the academic output.
Many thanks in advance for your time
Dr John Chetwood (john.chetwood@health.nsw.gov.au) On behalf of the The Multiple Advanced Therapies Research Team
Date Posted: 4 January 2024
You are invited to participate in an online survey via Redcap about contraception. The aim of this survey is to determine rheumatologists knowledge, attitudes, and behaviours about family planning and for prescribing contraception in patients with autoimmune and rheumatic diseases of reproductive age in Australia. Taking part in this study is voluntary.
This study involves the completion of a short anonymous survey. This survey should take less than 5 minutes of your time. Please feel free to forward the survey to your colleagues. The survey will conclude after approximately 30% of rheumatologists have responded or February 2024.
The study is being conducted by Dr Abhishikta Dey, Dr Antonia Shand, Dr Geraldine Hassett and Prof Natasha Nassar from the Royal Prince Alfred Hospital, Royal Hospital for Women, Liverpool Hospital and University of Sydney.
Your responses will be confidential and anonymous. The study contains no identifying information.
This study has been approved by the Human Research Ethics Committee (HREC) of The University of Sydney [HREC 2023/516].
Click here to complete the survey
The Australian and New Zealand Vasculitis Society (ANZVASC) invites you to participate in a survey designed to assess the differences in approaches to care in patients with ANCA Associated Vasculitis across Australia and New Zealand and to identify potential factors influencing choice of therapy. The results will be used to help inform an ANZVASC position statement on the management of AAV in ANZ currently being developed by the ANZVASC education committee. This study involves completion of an online survey. The survey is expected to take 10 minutes to complete. Medical Specialists who treat patients with ANCA Associated Vasculitis are invited to participate. Please share the link above with any relevant colleagues. This research project has obtained ethics approval from the Monash Health Human Research Ethics Committee. All survey responses are confidential, and all data will be stored on a secure online platform. Only the research team will have access to the data.
The survey will help us determine the extent to which rheumatology healthcare professionals need support in career advancement, particularly as it relates to global equity. We encourage rheumatology healthcare professionals currently in practice or training to complete this survey. The survey takes only 5 minutes to complete, and all responses will be completely anonymous. The responses are anonymous and will be used for medical education and research purposes. For any queries, please contact Dr. L Gupta at globalgeargroup@gmail.com
We are keen to understand attitudes and factors which affect the communication between rheumatologists and older rheumatology patients. This is important for both effective clinical management and future research to improve communication. This is a short web based study about attitudes of rheumatologists in Australia towards older people/patients. There is a significant increase in the aging population and we believe it is very important to understand attitudes and unmet needs in this area.
This project is a collaboration between Professor Charles Inderjeeth, ARA Member and Associate Professor of Internal Medicine and Geriatrics, Fatih Tufan and Dr Ayse Nur Tufan, Rheumatologist, Haseki Training and Research Hospital, Istanbul, Turkey.
Your responses are anonymous and will remain strictly confidential.
Click here to complete survey.
RACP Rheumatology Fellows are invited to complete this one-minute online questionnaire, in affiliation with the University of Sydney and Western Sydney Local Health District, assessing clinician perspectives on psoriasis.
Your responses will be informative as to standard practices of care, which is important for establishing a collective approach to the management of these patients. We strongly encourage you to participate.
Your responses are anonymous and will remain strictly confidential. All information collected will be non-identifiable. Please submit the questionnaire only once. This research is conducted by Dr Annika Smith and Associate Professor Peter Wong.