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Ethics approval: Auckland Health Research Ethics Committee (AHREC), reference AH23039
Principal investigators:
Aim: We are conducting an international Delphi survey of patients with CPPD and stakeholders (health-care professionals, governmental and non-governmental agencies and pharmaceutical representatives) to identify important outcome domains for future CPPD research.
Outcome Measures in Rheumatology (OMERACT) is an international organisation that seeks to standardise what is measured in studies. Although calcium pyrophosphate disease (CPPD) is common, it is poorly studied, and studies are varied in the ways they report results. In order for healthcare professionals to choose the best treatments for their patients they rely on studies to compare the effectiveness of new treatments with well-established treatments. Outcome domains (endpoints or results) are what to assess for a particular disease to determine whether a treatment is working. It is important to compare like with like wherever possible, one way to help is to encourage researchers to use a minimum ‘core set’ of assessments. It is important for this ‘core set’ of reported results to assess areas that are important to patients.
We aim to establish OMERACT core domain sets for short term (acute CPPD flare) and long-term CPPD studies (includes recurrent CPPD flares, chronic CPPD inflammatory arthritis and/or osteoarthritis with CPPD).
Recruitment of participants
Patients with CPPD and stakeholders (health-care professionals, governmental and non-governmental agencies and pharmaceutical representatives) are invited to participate in an online survey to rate the importance of a list of outcome domains.
There will be four surveys in total for this study each taking 20-30 minutes.
If you are interested in taking part in this exciting research, please visit:
Time-period of the research project: All rounds of the Delphi survey and analysis to be completed by the end of 2023.
Contact Details: For further information please contact Dr. Yiling Zhang
Project Title Attitudes of Healthcare Professionals and Patients with Rheumatoid Arthritis towards Parenteral Use of Methotrexate in Rheumatoid Arthritis Patients: A Qualitative Study.
Principal Investigators
Broad Aims of this Project
Reason for Doing this Research Project
Recruitment of Participants and Target Audience
Ethics Approval Details
TIme Period of the Research Project
For Further Information
Project Title
Multimodal MRI of myalgic encephalomyelitis/chronic fatigue syndrome: a cross-sectional neuroimaging study towards its neuropathophysiology and diagnosis
To investigate hypotheses of